WELCOME TO OUR HOME!

The diagnosis affected our home, too. We had to make changes both inside and outside……

So now we, too, are officially under the wings of the Good Angels.

JI’d like to have one of the many posts be about Dad, too……

A QUICK JOURNEY THROUGH “MOTOL””

Or, what our trips to Motol look like……

According to the doctors, Mum apparently saved my life. And it was all thanks to one email…,…

That was my little friend for just under three months, who……

My little sweetheart, I spent a long time wondering whether the letter I wrote to you……

The treatment has been given, so does that mean I’m a healthy little girl now? That’s what our whole family wishes for more than anything……

It was in April that I found out about my diagnosis and was immediately admitted to hospital, too. It was all a bit overwhelming……

SMA, or spinal muscular atrophy, a disease for which, until recently, there was no cure……